INVISIBLES (SPAIN)
make visible all the lives behind Spinal Muscular Atrophy (SMA), a highly disablinG disease.
Brief Description
The challenging reality of SMA patients is invisible to most of society and there are many lives that have to work in the background to support someone with SMA.
The idea was to create a disease awareness campaign to raise the profile and
understanding of a highly disabling and rare neurogenerative disease called Spinal Muscular Atrophy (SMA) and to drive traffic to https://www.togetherinsma.com/ where there is information and guidance for people and families who are coming to terms with the disease.
The campaign shows the critical yet sensitive dynamic between patients and caregivers – and the need for caregivers to be supportive and always present but at the same time, invisible, so patients can have their personal space and lead better lives.
Why is it significant?
This campaign holds significance for several reasons. Firstly, it aims to raise awareness about Spinal Muscular Atrophy (SMA), a highly disabling and rare neurogenerative disease that often goes unnoticed by society. By shedding light on the challenges faced by SMA patients and the vital role of caregivers, the campaign seeks to increase understanding and empathy for those affected by the disease.
Moreover, the campaign emphasizes the delicate balance between patients and caregivers, highlighting the crucial yet often invisible support provided by caregivers. It underscores the need for caregivers to be present and supportive while respecting the personal space and independence of patients. By promoting this understanding, the campaign strives to foster a more supportive and inclusive environment for individuals and families impacted by SMA.